back on the 'roids

yes, after a very interesting appt with the doctor tim is back on the steroids in the grand amount of 100mg a day (this is from a gradual drop over months down to 20mg every other day). he was sad. in addition to sleeplessness and puffiness and a host of other side effects this amount seems to really break down his muscle mass (especially his thigh muscles).

there was a bit of confusion since the appt was never put in the schedule-they didn't have his chart or any other info and that kinda slowed us down. but 3 hours later we decided to try a different stomach medication and increase the steroids with the assumption that we are probably dealing with a graph vs host issue. (waiting for the biopsies to get back)

we have to go back this friday and see how he is feeling. good news though...he was able to make a soccer game and a wedding (congratualations heidi and alan) on saturday. this weekend has been pretty good so far-time to get him up for church now.

hope you all are having a great weekend.

thanks for checking in

tim and tammy